Resistant Bacteria: PICC Line
On 10-8-2016 due to the highly resistant bacteria the oral antibiotics didn’t work. Therefore my doctor decided to use IV antibiotics and he ordered a PICC line. I had to get it at the hospital, because for placement of the line they use live X-ray. The PICC line (central line) is threaded through a vein directly into the heart. It is ideal for long term IV antibiotics, blood draws and for people like me that are a difficult stick. Like the previous antibiotics after ten days once again they failed to work and the doctor gave me another round.
Resistant Bacteria: Diagnosis
Since that failed again my home health nurse recommended a different company called Pathogenius. The test results for the urine showed colonization. So the doctor and the nurse focused on the Pseudomonas and Seratia bacteria in my lungs. After another ten days on Zosyn a wide spectrum antibiotic I waited an additional two days before the nurse took a swab of my trach. Three days before Christmas the nurse took another culture and over weekend I spiked a temperature and my lungs had muted breath sounds. I feared pneumonia. My caregiver performed CPT (chest percussion therapy) and my breath sounds improved.
In any event the test results came back and showed an active Pseudomonas infection on 12-26-2016. To my surprise the doctor ceased treatment with antibiotics. He said the results tested negative for the Seratia bacteria. He suspects colonization of the Pseudomonas bacteria.
Resistant Bacteria: Perspective of Jessica Kennedy
The fevers and short-winded sensation fill me with discouragement. First, a urinary tract infection and the lung infections. When the urinary tract infection was cured then the Seratia and Pseudomonas bacteria in my lungs remained infections. Due to the resistant bacteria I suffered with the symptoms clear through late December.
In 1998 my respiratory therapist, Susy Jouett told me that I had to beware of infections. In short, the more infections I have the more antibiotics I will take. Consequently, resistant bacteria illnesses require stronger antibiotics and eventually none left that work. The danger is that an infection will result in septic shock.
This morning my temperature was 98.8 and my normal temperature is 97.4. At lunch my temperature was 96.9. So am I sick or not? I have a headache, am sluggish, eyes are scratchy and body throbs. If I didn’t know better I would think I had the flu. There is nothing left to do, but pray.
Shouldn’t reliance on prayer hearten me? “Be careful for nothing; but in everything by prayer and supplication with thanksgiving let your requests be made known unto God. And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus.” Philippians 4:67
I repeat the verse several times a day and it gives me peace.
Yet fear, worry and doubt cloud my first reaction not acceptance of His will and prayer.
“And we know that all things work together for good to them that love God, to them who are the called according to his purpose.” (Romans 8:28)
I think I am afraid, because I know His will isn’t a guarantee it will be easy. After all Quadriplegia and ventilator-dependence weren’t my choice but have been blessed in many ways by it. I became disabled eighteen years ago and am thankful for them and given the choice I would choose ventilator-dependence and quadriplegia again.
So, I cringe from the suffering I may have to endure, when I read verses like the below. “And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me.” (2 Corinthians 12:9) I memorized this verse and repeat it until I find peace.
I am ashamed of my weakness, humbled and awestruck by Christ’s crucifixion. After all Jesus chose crucifixion and could have stopped His torment at any time.
Therefore as I whine and complain or cry out to God to make my pain end I realize how great His gift was and love Christ even more. How long will it be until I learn to turn to Christ and not worry and fear.
Have you had any problems with diagnosis? Share your story and if you have any suggestions, please leave a comment.